Conducting Accessible Research: Including People With Disabilities in Public Health, Epidemiological, and Outcomes Studies.

• Autores: Dianne Rios, Susan Magasi, Catherine Novak, Mark Harniss
• Localización: American journal of public health, ISSN 0090-0036, Vol. 106, Nº. 12, 2016, págs. 2137-2144
• Idioma: inglés
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• Resumen

  • People with disabilities arelargely absent from main stream health research. Exclusion of people with disabilities may be explicit, attributable to poorly justified exclusion criteria, or implicit, attributable toinaccessible study documents, interventions, or research measures. Meanwhile, people with disabilities experience poorer health, greater incidence of chronic conditions, and higher health care expenditure than peoplewithout disabilities. We outline our approach to "accessible research design"--research accessible to and inclusive of people with disabilities. We describe a model that includes 3 tiers: universal design, accommodations, and modifications. Through our work on several large-scale research studies, we provide pragmatic examples of accessible research design. Making efforts to include peoplewith disabilities in public health, epidemiological, and outcomes studies will enhance the interpretability of findings for a significant patient population. [ABSTRACT FROM AUTHOR]