Resumen de Viure o sobreviure?: la vida quotidiana de les persones amb dany cerebral adquirit i les seves famílies des de la perspectiva dels agents implicats
People with acquired brain damage and their families are described as silent epidemic because, although they have extended their survival, no psychosocial long-term means have been increased to improve their quality of life. The aim of this doctoral thesis is to contribute to their welfare, identifying the most important factors, from the perspective of the implicated people to enhance their quality of life. To achieve this aim, we want to identify the psychosocial, the facilitating and the complicating elements that coexist in the daily life of people with acquired brain damage and their families. We use qualitative methodology. Data were obtained from focus group and interviews. From the analysis we have obtained 3 psychosocial dimensions: process of comparison, uncertainty of their daily life and perception of uncovered needs. We conclude this thesis with proposals of psychosocial intervention from an ecologic point of view
