Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

• A. Cano-Garcinuño ^[18] ; D. Forns-Serrallonga ^[1] ; I. Mora-Gandarillas ^[19] ; A. Bercedo-Sanz ^[20] ; M.T. Callén-Blecua ^[21] ; J.A. Castillo-Laita ^[22] ; I. Casares-Alonso ^[2] ; E. Tauler-Toro ^[3] ; L.M. Alonso-Bernardo ^[4] ; Á. García-Merino ^[5] ; I. Moneo-Hernández ^[6] ; O. Cortés-Rico ^[7] ; I. Carvajal-Urueña ^[4] ; J.J. Morell-Bernabé ^[8] ; I. Martín-Ibáñez ^[9] ; C.R. Rodríguez-Fernández-Oliva ^[10] ; M.T. Asensi-Monzó ^[11] ; C. Fernández-Carazo ^[12] ; J. Murcia-García ^[13] ; C. Durán-Iglesias ^[14] ; J.L. Montón-Álvarez ^[15] ; B. Domínguez-Aurrecoechea ^[16] ; M. Praena-Crespo ^[17]
  1. [1] Universitat Autònoma de Barcelona

     Universitat Autònoma de Barcelona

     Barcelona, España

     
  2. [2] CS Venta de Baños, Palencia
  3. [3] ABS Martorell, Barcelona
  4. [4] CS La Ería, Oviedo
  5. [5] CS Vallobín-La Florida, Oviedo
  6. [6] CS Las Fuentes Norte, Zaragoza
  7. [7] CS Canillejas, Madrid
  8. [8] CS Zona Centro, Badajoz
  9. [9] CAP La Mina, Barcelona
  10. [10] CS La Cuesta, Tenerife
  11. [11] CS Serrería, Valencia
  12. [12] CS El Valle, Jaén
  13. [13] CS San Felipe, Jaén
  14. [14] CS Arroyo de la Luz, Cáceres
  15. [15] CS Mar Báltico, Madrid
  16. [16] CS Otero, Oviedo
  17. [17] CS La Candelaria, Sevilla
  18. [18] CS Villamuriel de Cerrato, Palencia
  19. [19] CS Infiesto, Asturias
  20. [20] CS Buelna, Santander
  21. [21] CS Bidebieta, San Sebastián
  22. [22] CS Fuentes de Ebro, Zaragoza

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• Localización: Allergologia et immunopathologia: International journal for clinical and investigate allergology and clinical immunology, ISSN-e 1578-1267, ISSN 0301-0546, Vol. 44, Nº. 2, 2016, págs. 131-137
• Idioma: inglés
• Texto completo no disponible (Saber más ...)
• Resumen

  • Background Parents’/caregivers’ quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents’/caregivers’ quality of life. This study researches the psychometric properties of IFABI-R.

    Methods Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents’/caregivers’ quality of life were measured: child's asthma control, family functioning, and parents’/caregivers’ perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified.

    Results IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test–retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents’/caregivers’ quality of life.

    Conclusions IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.